The collection of GP Data for Planning and Research will now take place from 31st March 2022.
This gives more time to take feedback and then to communicate more widely with patients in a public conversation.
We all know data saves lives and there is no clearer demonstration of this than our response to the pandemic. The use of data allowed us to bring down the hospitalisations from COVID-19 by creating a Shielded Patients’ List, for example.
The NHS willl also work with other interested parties such as health charities and research organisations to share a wider message about the benefits of the data collection to the health service and life sciences.
The data held in the GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has developed a new way to collect this data, called the General Practice Data for Planning and Research data collection.
NHS Digital has engaged with the British Medical Association (BMA), Royal College of GPs (RCGP) and the National Data Guardian (NDG) to ensure relevant safeguards are in place for patients and GP practices.
NHS Digital will not collect patients’ names or addresses. Any other data that could directly identify patients (such as NHS Number, date of birth, full postcode) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital.
You have the right to control how medical information about you is shared, disseminated or sold, for purposes other than your direct medical care – so called secondary uses (or purposes).
Secondary uses include projects involved in risk stratification, “population health management”, national clinical audits, research, healthcare planning, commissioning of healthcare services by CCGs, commercial and even political uses.
This collection will start on 31st March 2022 so if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with your GP practice. You can pick up an Opt Out of GPDPR form from Reception for yourself or others to complete, or you can submit an Opt Out declaration for yourself below.