Opting out of the General Practice Data for Planning and Research (GPDPR)

Posted by: helenbell6 - Posted on:

The collection of GP Data for Planning and Research will now take place from 31st March 2022.

This gives more time to take feedback and then to communicate more widely with patients in a public conversation.  

We all know data saves lives and there is no clearer demonstration of this than our response to the pandemic. The use of data allowed us to bring down the hospitalisations from COVID-19 by creating a Shielded Patients’ List, for example.

The NHS willl also work with other interested parties such as health charities and research organisations to share a wider message about the benefits of the data collection to the health service and life sciences.

The data held in the GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has developed a new way to collect this data, called the General Practice Data for Planning and Research data collection. 

NHS Digital has engaged with the British Medical Association (BMA), Royal College of GPs (RCGP) and the National Data Guardian (NDG) to ensure relevant safeguards are in place for patients and GP practices. 

NHS Digital will not collect patients’ names or addresses. Any other data that could directly identify patients (such as NHS Number, date of birth, full postcode) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital. 

You have the right to control how medical information about you is shared, disseminated or sold, for purposes other than your direct medical care – so called secondary uses (or purposes).

Secondary uses include projects involved in risk stratification, “population health management”, national clinical audits, research, healthcare planning, commissioning of healthcare services by CCGs, commercial and even political uses.

This collection will start on 31st March 2022 so if you do not want your data to be shared with NHS Digital please register your Type 1 Opt-out with your GP practice. You can pick up an Opt Out of GPDPR form from Reception for yourself or others to complete, or you can submit an Opt Out declaration for yourself below.

Click here to see/hide what is NOT affected by opting out

Opting out of Type 1, secondary uses:

  • Will have no effect on anonymised or aggregate (numbers) information being shared within the NHS to help medical research
  • Inno way prevents you from agreeing – with your explicit consent – to partake in high-quality medical research at your GP surgery/local hospital/other health organisation, where you have given your explicit consent to be involved (i.e. you have been asked first).

It will in no way prevent you from

It will have no effect on your GP surgery and the way that it is paid by the NHS or on the services that it provides (e.g. via CQRS).

It will have no effect on the way that any hospital is paid by the NHS for treating you (e.g. Payment by Results).

It will have absolutely no effect whatsoever on any of the following:

  • The Electronic Prescription Service
  • Choose & Book/E-Referrals
  • The Summary Care Record
  • EMIS Web data streaming
  • GP2GP transfers
  • The NHS Cervical Screening programme
  • The NHS Bowel Cancer Screening programme
  • The NHS Breast Screening programme
  • The NHS Abdominal Aortic Aneurysm Screening programme
  • NHS Diabetic Retinopathy Screening
  • Information being provided to the National Disease/Cancer Registries (run by Public Health England).
  • Uploading of aggregated information via The Quality and Outcomes Framework
  • Uploading of aggregated information via QSurveillance
  • It will in no way affect any medical care you need for COVID-19
  • It will in no way affect your eligibility for, or your ability to receive, your
    COVID-19 vaccinations
  • It will in no way affect your ability to hold, or show, a “COVID-19 vaccination passport”
  • It will in no way affect your ability to contribute to research about COVID-19, if you are asked for your explicit permission first


Opt Out Form – Medical Records
Dear Mayfield Medical Centre,
I wish to opt out of General Practice Data for Planning and Research (GPDPR). I do not wish to allow my medical records to be used for any purpose other than my medical care.
Please ensure my dissent to secondary uses is recorded by whatever means possible, including adding the following code to my GP record:
Type 1 objection: 9Nu0/XaZ89/827241000000103
I understand that I can opt back in to any or all of these at any time in the future.
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